Ebook Thoughtful Dementia Care: Understanding the Dementia Experience
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Thoughtful Dementia Care: Understanding the Dementia Experience
Ebook Thoughtful Dementia Care: Understanding the Dementia Experience
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About the Author
Jennifer Ghent-Fuller worked as a nurse in Canada for over twenty-five years, the last eleven as an educator and support counsellor for people with dementia and their families and other carers. Jennifer has a Bachelor of Arts from Queen’s University (Kingston, Ontario), a Bachelor of Science in Nursing from the University of British Columbia (Vancouver, British Columbia), and a Master of Science in Nursing from the University of Western Ontario (London, Ontario). Jennifer has also worked as a volunteer in the fields of literacy and elder abuse prevention. She is now retired.
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Product details
Paperback: 180 pages
Publisher: CreateSpace Independent Publishing Platform (April 3, 2012)
Language: English
ISBN-10: 1480007579
ISBN-13: 978-1480007574
Product Dimensions:
6 x 0.4 x 9 inches
Shipping Weight: 11.7 ounces (View shipping rates and policies)
Average Customer Review:
4.8 out of 5 stars
99 customer reviews
Amazon Best Sellers Rank:
#254,435 in Books (See Top 100 in Books)
Terrific account of how Alzheimer's disease and other dementia illnesses affect our LOs. I found the set up of the book to be perfect as it moves from descriptions of the patient's broken memory processes, to the changes in their behavior, and finally to the loss of their ability to function as an independent adult. The first two thirds are very interesting reading, and last third is filled with practical advice such as assisting your LO in coping with the progression of dementia. Lots of anecdotes keep the book from being a dry read. I have been caregiving for a while and I learned quite a few things.My only quibble is with her statement that Alzheimer's could be viewed a gift from God, to teach us to be unselfish caregivers. I understand her major point, which is to not view dementia as a punishment from God, but as someone who is burnt out from caregiving, I did take offense.Ghent-Fuller states in the introduction that she wants to enlighten and educate the reader from the perspective of the person with the disease and she certainly met that high bar.
I am new to dealing with memory loss. My husband's short-term memory, which hasn't been good for over ten years, took a turn for the worse this last year leaving me shocked and feeling alone as we have no extended family close by with real experience of our situation or that can help. The author has a very good and compassionate understanding of memory loss -- the different causes and manifestations. It is helping me deal with my pain and patience. I saw another review that seemed to take issue with grammatical errors -- that the book needed editing. As a former college professor, I did notice these. But they are not really egregious or all that distracting. The content was too valuable to me to fuss about the minor grammatical problems.
It is physically condensed and packed (lots of words and paragraphs per page) and looks self-published as some of the pages are not cut the same-that is okay.Parts of it are written from the point of view of the person inflicted with the disease - which is very unique. This helps an outsider really 'get it' and while dementia can be cruel to the carer (caregiver) "too," this book helps us caring understand what a person is going through - so we can put our own reactions aside and extend compassion. I do not recall if it discusses boundaries. We, family or professional carers need to set boundaries and give our selves 'time outs' (too). It is walking a tightrope sometimes - DO exercise, eat healthy, and find some peace, quiet and joy around this 'work'.
This book belongs in the library of anyone who cares for or about someone with dementia. My mom has passed now, but I learned so much about her thought processes and about how dementia affects memory. READ this book! You will understand why your loved one seems perfectly fine on the phone to those who don't live with them when you know perfectly well that they aren't fine. It will help you change your approach and lessen the stress all the way around. It's an easy read, too.
There is a lot of good information in this book. The anecdotes are especially illuminating. The author is very knowledgeable, and most people would benefit from her information and insight. But the writing and editing leave much to be desired. The author says "lady" and "fellow" frequently instead of woman and man. Some people might like that, but I think it's annoying. And the punctuation is confusing and distracting. Commas are used excessively and almost randomly, obscuring meaning. The language is accessible, but these two quirks make it not at all "easy to read" for me. I finally gave up and ordered another book on the topic.
The most helpful single book I have found (or nearly so), though it does not replace a broad overview such as "The 36 hour Day". She describes kinds of memory, how they interact, and how these interactions affect the experience of the person with dementia and the caregivers. Clearly written, with plenty of helpful examples. However, this book does not deal with our relationship with God: for that, Christians will want to get "Second Forgetting" by Dr. Benjamin Mast.
I was very impressed by the way this book was written in layman's terms. It was easy to understand and the examples of different patients and different circumstances were spot on. I could read a chapter and realize it described my spouse to a T. Or a different part of the book would explain why my spouse was behaving in certain ways. I highly recommend it to anyone who needs better understanding of the affects of dementia or Alzheimers.
Outstanding presention. Almost every question I had was answered. Memory loss is new to me and I am not a medical pro. BTW, I took the quick dementia test with 5 items and flunked. A genetic issue? Anyway, a thoughtful and respectful approach is needed when family is involved. I understand Mom's limits and communication needs more. Also, she is compensating exceptionally well. Many of my siblings don't see a problem - yet.
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